Thinking about the present situation of autism in China

In recent years, due to the government, ZhongCanLian and the joint efforts of many aspects, society, China's autism research and exploration work has made great development and progress. From the understanding of autism hazard studies how to diagnose, treat, attention from people with autism condition to classify them into the management for the disabled, from the establishment of China's association, committee to autism autism BBS meeting, all marks China's autism has achieved significant progress. At autism committee was founded and BBS meeting about more than 100 people, in addition to some of the leaders, experts and autistic relatives and friends, most of the representative of the autistic children training institutions across the country. Because the window is tight, BBS only to four experts and seven agencies, representing more than half a day to speak, each about 20 minutes of the speech, they can only put his keynote speech content introduced enrichment. Fortunately, the carefully prepared speeches have been meeting organizers charge, is likely to be edited in the future, then we can catch a glimpse of one of the highlights.

Learned that at the meeting, due to various aspects of progress, and promote the current in some places, training institutions or private organizations autism autism received input and strong support of the government, and gained widespread media attention, or to get the foundation and other charity fund (for example, weifang, Qingdao, huizhou, Shanghai some training centers or schools), some autistic patients and their relatives and friends also won a strong funding and support from all walks of life. But the general feeling is that autism in China or in knowledge, publicity and popularization of knowledge to the early stages of research, treatment and social security; Fewer and the teachers, funds, sites are not training institutions can't meet the needs of many people with autism; Most birds, the training institutions in an unknown, unknown, unknown attention, not understood, not for the legal protection of the dilemma. In addition, the treatment to improve the condition of children with autism gold stage for the age of 1 ~ 3 years old, but because most parents don't understand not clear or lack of knowledge, or can't afford expensive education training, often make those autistic children missed the best time to change their fate.

It is understood that the central government or the provinces, autonomous regions and municipalities directly under the central government with no clear to people with autism in order to guarantee the relevant laws and regulations of the object, plus there is no specialized agencies or professionals engaged in the work, no money support this work, therefore, in most places still can't or haven't look beautiful, "the protection of the disabled to safeguard the rights and interests of people with autism a course of norm, implement preferential for a universal implementation of security system, most of the autistic patients and their relatives and friends also not the same as other disabled people enjoy the welfare and benefits they deserve, most of the autistic patients and their relatives and friends is still in a no cognizance, empty, no one understand, the pain which is unable to get help. High training costs, treatment, and patients who cannot provide for oneself, can't fit into society, unable to go to school, employment, self-injury self-mutilation need frequent accidents of dangerous moment accompanied by relatives to take care of, lead to relatives to resign, unemployment, family economic distress, debt-ridden, remorse complain again cause disintegration of family breakdown, lead to many human tragedy, destroyed the social harmony. These from another Angle shows the advance to the importance and urgency of the work.

Some argue that the cause of the current our country autism work struggling a lot, mainly because of China's economic, social, medical and security system due to the low level of development. In addition, there are several reasons are also important:
Autism is a new issue. Autism is recently more than 20 years in China, in recent years on the agenda of the government and ZhongCanLian. On December 24th, 2007, the United Nations general assembly resolution, sure, since 2008, will every year on April 2, as the "world autism day", suggests that the international community is also began to seriously, pay attention to the social problems of autism. We note that, despite the experts had just fight alone in their own territory, but some developed countries and better solve the rights of people with autism and welfare, treatment and education training, into the social employment, and many other problems. Most developing countries including China to the welfare of people with autism, education, employment, medical care, pensions, etc. Basically it is still a blank, need to know step by step to solve step by step.
Second, the government and relevant departments of autism problem seriously care enough. Performance in many officials including the competent department of health, education and even the disabled persons' federation officials of autism all don't know, don't know, don't know, performance at all levels of government have no organization, personnel, funds etc for autism management, research, policy, legislation and supervision and regulation, in lack of social resource integration, efficiency is not high and scattered and serious insufficiency, the lack of communication with international autism researchers and institutions.

3 it is the media of autism and publicity of the related content is less, autism related knowledge is not popular, the public is quite confused with autism or ignorance, lack of compassion and tolerance in patients with autism.
Four is the social resources, charity, treatment of autism research fields such as training areas, poor families need to erase solution into funded are very few, even blank.
Five is engaged in the medical science theory research of autism and scattered, less theoretical research lag, disconnect, lack of authority, no system, no form resultant force.
Six is legislative and administrative organs of the formulation of relevant policies, laws and regulations lack, autism lag, or without letup, difficult to operate, check the lack of implement.
Seven is not regular autism organizations, lack of leadership, the folk organization scattered and fragmented or steep profits, disorderly competition, fight for survival, the lack of authority and scientific planning.
Eight is autism training, education, medical treatment, psychological teacher talent shortage. Now on-the-job teachers lack of comprehensive training system, lack of medical treatment for autism education training, supervision and the supervision of the third party certification, and dried up engaged in such work.
Nine is a lot of parents on autism awareness there is foolish foolish, don't know the basic knowledge of autism, don't know the child to hospital appraisal, autism has been incorporated into mental illness don't know, need and the early intervention in the orthodontic treatment can obtain good effect; Many parents know that children with autism, lest affect oneself and family reputation, deliberately to hide; Also some parents because of economic reasons, such as giving up the education training for the development of children, left to its own devices. And parents don't know how to apply for is not to apply for a country or charity relief fund, just hold out there waiting.

It is understood that the world's major developed countries of the onset of autism has been on the rise in recent years, so some say the world is in a popular lonely (closed) the era of such obstacles. Such as Japan's sampling survey statistics, 1980 years ago, every ten thousand people with autism was 0.7 ~ 10 people; After 1980, as 9 ~ 12 people; 21.08 in 1996. Another statistics, from 1991 to 1996, Japan reported incidence of autism among value of 4.4 per ten thousand people; Published from 1992 to 2001, the incidence of autism median of 12.7 per ten thousand people; The incidence of children's broad developmental disorders (PDD) in 27.51 per ten thousand people or more persons (see Japanese professor araki spike product the Japanese health, education, welfare policy status of children with autism and subject "). The United States department of education, according to data in the past 10 years, the United States the number of autism diagnosis has been increased by a factor of 7. Only 1998 to 1998, the United States of California 11 years the number of school-age children with autism diagnosis is increased by 210%, while in continental Europe have similar growth.

Studies have shown that the incidence of autism has reached 1/150 of worldwide, compared to just one over ten thousand in 20 years ago; Currently there are 35 million people with autism over the world, 40% of whom are children; The number of children with autism worldwide annual growth rate has reached 10% ~ 17%; The world have an autistic child is born every 20 minutes. Relevant institutions after investigation that autism rates in our country also like Europe and the United States, Japan and other developed countries is on the rise, the population ratio is also similar. In 2001, China for the first time sample survey of the disabled children mental disability children included in the scope, framed aged 0 ~ 6 years old was conducted in 60000 children. China disabled persons census data shows, the incidence of autism have accounted for all kinds of mental disability first in China, the average one out of every 500 children with autism. At the same time, the proportion is growing. Reporter thought, because China's large population, large population base, and the uneven distribution of medical institutions, and the statistics method to the diagnosis of autism method is relatively backward, the Chinese people with autism how much is still a mystery, but there should be no less total. The crux of the problem is, Europe and the United States, Japan and other developed countries have already put people with autism into the social security system, to make them enjoy the social security and to be able to share the achievements of social development and progress, remove the trouble back at home of the physical. In our country, for the welfare of people with autism and social security is still in the primary stage of beginning, most of the autistic patients and their relatives and friends are still in the plight of self-salvation, struggle, isolated. With the deepening of the people awareness of autism and its consequences, in 2007, ZhongCanLian began to put into the psychiatric rehabilitation in autism, chose 31 pilot cities, maternal and child health, special education and related social network power effect, exploring autistic children early screening, early diagnosis and early intervention of rehabilitation training system, and prepare the rehabilitation training textbooks, unified in children with autism rehabilitation training, screening, diagnosis, professional personnel training work. In 2008, the standing committee of the National People's Congress passed the new revision of the law of the People's Republic of China on the protection for the disabled, clear the people's government at or above the county level shall incorporate undertakings for disabled persons into the national economic and social development planning, strengthen leadership, comprehensive coordination, and will be allocated undertakings for disabled persons listed in the budget, establish a stable funds safeguard mechanism. Although these measures and regulations are implemented, but we are still lack of enforcement regulations, funds, supervision mechanism, previous owed a lot at the same time, to do things also many, still a long way to go.

30 years along with our country economy high speed development and the continuous improvement of the people's livelihood construction progress, such as social security is to thoroughly solve the autistic patients and their relatives and friends family difficulties, people with autism should be brought into the scope of the whole social security system and the fundamental solution for their training, rehabilitation, affect their living conditions, including school and employment trouble back at home when the question! How to solve the above problem, need a man of insight from all walks of life, the CPPCC member of National People's Congress calls for proposals, needs all levels of government concern value and specific implement measures, need special protection on the level of laws and regulations, needs a lot of publicity from the media, to the generosity of the charity organizations, more needs the joint efforts of the whole society.

Believe in the near future, the Chinese people with autism will usher in a new era of a happy worry-free.